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לע עדוי ינאש המ הז
.ןירקורפ
ץראב ןאכ הז תא גישהל רשפא ךיא שפחמ ינא
Dear fellow MS'er;
this is so important that I am sending it out to everyone
I think
me about Multiple Sclerosis. Even those who only got
who has ever contacted
of this newsletter and then dropped further contact. I
one or two issues
must have felt when you read my constant admonishments
know how many of you
stress control and exercise. Your doctor was
about diet, supplements,
all about how to help you deal with MS and he pooh-poohed
supposed to know
OK, I'm sure he will pooh-pooh this too. But he'll be
everything I said.
best in medicine still have no clue of how to deal with
wrong again! The
MS.
started using the Procarin Patch. I think every MS'er
I have just
and I'll tell you why I think so. First, as all of you
should give it a try
receiving this newsletter, I am very conservative and
know who have been
on any new MS treatment. I don't jump on anybody's
need to be convinced
getting lots of positive feedback from the people in our
bandwagon without
trying things out for myself. As I always say, I want to
group as well as by
for a new treatment. I'll wait 'til the first 99 get out
be # 100 in line
Procarin, if it is used correctly, is the best and
of their wheelchairs.
that I am aware of. No - IT IS NOT A CURE! NO,
most effective MS treatment
everybody that has MS. However, Procarin seems to be
it won't help
helping over 50% of MS'ers reverse some long standing MS
effective in
couldn't even be touched effectively by drugs before now.
symptoms that
drugs do not make symptoms go completely away even though
The ABC
reduce the severity of some of them. The ABC's hope to
they do help to
of new R/R exacerbations, but they don't very often stop
reduce the number
Some people in our group are reporting that some
anything altogether.
are going away with the use of Procarin. Now that's
"permanent" symptoms
MS news and, at least for me, it's worth pursuing.
exciting
aware of Procarin when Lynn Arnett, a member of our
I first became
told me about it in December. As usual I was skeptical
group from Michigan,
about expecting very much from "new, unknown treatments
and cautioned her
good to be true." By February she was reporting an 80%
that sounded too
all her symptoms. In May, Barbara Greenfield from here
overall reduction in
she was able to move one foot after a few days using
in Florida reported
one of her feet might not sound like much, but it was the
Procarin. Moving
in nine years that those toes wiggled and her foot moved
first time
also reports that her voice is stronger, her vision has
voluntarily! She
hands can grip things better. In between those two I was
improved and her
reports from lots of other patients who seemed to
also getting less detailed
be having positive experiences using the patch.
we were also receiving reports from very disappointed
Of course
see any difference. But nobody was reporting any side
MS'ers who did not
and then a mild skin rash from the patch adhesive. The
effects except now
famous for side effects than giving patients any positive
ABC drugs are more
treatment that actually reduces long-standing "permanent"
result. Here's a
without any side effects and only costs $250 a month.
symptoms
of you who have not heard from me in awhile I am still on
For those
Lo-fat diet, the supplements, exercise regimen and stress
the modified
I still believe Dr. Swank is right. If we keep our body
control program.
avoid anything we are allergic to, especially hard fat,
healthy enough and
to keep our MS under control for a long time. But, Swank
we should be able
75% of the patients following his treatment will still be
also says, only
25 years after diagnosis. The disease will still be
working and walking
likelihood it will finally overcome the diet via stress.
there. And in all
out that I'm part of the 25% that doesn't make it for 25
Well, it turns
stop working after 23 years and I have not walked without
years. I had to
crutches since they amputated my leg in 1990. STRESS!!!
enough "permanent" symptoms to be officially called 100%
I now have
the VA and Social Security. But, I'm not down and out or
disabled by
are just certain MS symptoms I have to learn to live
depressed. There
is some major sleep disturbances; night sweats, spastic
around. One of them
and gagging while lying down) lying awake for hours and
dysphasia (choking
up 6 or 8 times a night to empty my bladder. Just 48
hours and getting
Procarin I slept well with no night sweats or gagging
hours after starting
up twice to empty my bladder. If I never see any more or
and I only got
night's sleep every night with no more bladder control
better result, a good
other old man in my age group has is certainly worth $250
problems than any
a month to me!
reason I started the patch was because of my legs. For
But the real
had a kind of R/R "dead feeling" in my remaining foot
several years I have
way I can describe it is that sometimes it feels like
and ankle. The only
encased in a cement boot. Over the past few months the
my foot has been
gone from R/R to semi permanent and it greatly effects my
feeling has
I have been unable to walk more than a few steps without
balance and gait.
even with crutches I've started falling quite regularly.
support and
month's newsletter I told you about my next door neighbor
In last
and wanting me to go fishing with him. Now I have not
getting a new boat
any kind since I was diagnosed with MS in 1967. But back
been on a boat of
whippersnapper of twenty in the Coast Guard, I used to
when I was a young
the ladders and the masts on ships and boats large and
scramble up and down
sailor with sea legs that wouldn't quit. So, the last
small. I was a real
in June we went out fishing on a 26-foot cabin cruiser.
weekend
the first swell I couldn't move without falling! It was
Once we hit
My balance was so bad on that rolling boat that I
a total disaster.
in the fish fighting chair where I could strap in. I
couldn't sit except
it was finally time to do something more to help control
had to admit that
strictly stay on our program. It has kept me going for
my disease than just
now it needs help. So, July 1st I started the Procarin
all these years, but
Patch.
day of using Procarin the cement boot went away. Instead
On the 5th
walk of an MS patient I started back to a more normal
of the stiff-legged
Now I'm walking out to the mailbox again without aid.
gait by the 8th day.
gets all the credit or not, but it has sure been a
I don't know if Procarin
of life in a very short period of time. I'll keep
boost to my quality
in this newsletter in the following months. Right
reporting on my progress
first flush of success I feel like I'll keep using these
now with the
patches forever.
tell you what little I know about Procarin. I have never
So, let me
with Elaine Dulack, the lady that came up with this
met nor corresponded
no axe to grind one way or the other. Mrs. Dulack is a
idea, so I have
has MS. She went back to the University in a research
registered nurse who
to try and find more help for herself in dealing with her
capacity in order
MS than the medical community can provide.
has published her theory of why she thinks Procarin
Mrs. Dulack
put me off about Procarin initially. It's pretty far
works. Her theory
is a theory? The important thing is does it work?
out. But, how important
say that for me it does. I honestly don't care how or
I can unabashedly
why, I just want to be able to sleep and ambulate again.
led to some work done by Dr. Baynard T. Horton, MD of
Her research
and Dr. Hinton Jonez, MD of the Sisters of St Joseph's
the Mayo Clinic
Washington. Dr. Jonez began treating MS patients with
Hospital in Tacoma,
per Dr. Horton's ideas in 1946 and got unbelievably good
injected Histamine
results until his death in the 1950's.
Histamine is a natural substance that occurs in the human
However,
cannot be patented. So, when Dr. Jonez died, so did
body and hence
for MS. If there is no patent, there are no big bucks
histamine treatment
there was no interest from any of the pharmaceutical
to be made; hence
bother helping people if the company can't make a lot of
companies. Why
I believe that greedy little decision has cost
money with the treatment.
of MS patient's untold pain and suffering for the past
hundreds of thousands
50 years.
Histamine can be a dangerous substance. Too dangerous
Injected
nurse to fool around with. (My university major was
even for a registered
and I know I wouldn't want to mess around with
Chemistry and Bio-chemistry
into my body.) So Mrs. Dulack looked for another way to
injecting it
to MS patients and found it in a transdermal patch. The
deliver histamine
patch, could be patented and that is what she did. The
delivery system, the
can not be patented, but a unique way for histamine
medical use of histamine
to a patient can be patented. So the patch is patented.
to be delivered
have any problem with that. Sure, Mrs. Dulack and her
I don't
some money because of the patent. Fine. She spent a lot
husband are making
doing research and then formulating and trying the result
of time and effort
Personally I think they deserve to make some money out of
out on herself.
However there are people who think they should give away
their efforts.
gesture. Others figured out other delivery
Procarin as a philanthropic
the patent. I guess that's OK too. Except it reminds
systems that bypass
writing a best seller by stealing the plot from another
me of someone
author.
the patent, only those compounding pharmacies the Dulacks
Because of
dispense Procarin and a medical prescription is required.
have licensed can
may be a problem. Many physicians seem joined at the
Getting a prescription
companies and refuse to write prescriptions. I asked
hip with major drug
at the VA for one and didn't even get the courtesy of a
the "MS specialist"
And this man is supposed to be helping the Paralyzed
return telephone call.
research new MS treatments. The NMSS is definitely
Veterans of America
Procarin on its Internet web sites. The big money drug
against anyone using
for MS treatment seems to still be firmly in place.
company monopoly
for more Procarin information. 1-800-927-4227. Or
Here is a phone number
go to:
>

is quite delicate and must be stored and transported very
Procarin
is to remain potent. Perhaps mishandling is part of the
carefully if it
the failures by MS'ers trying Procarin. The medication
reason for some of
refrigerator for more than 2 minutes. And the two-hour
is never out of my
is with an ice chest. For those of you who want to
drive to the pharmacy
own medication without using patches, or who live too far
try making your
pharmacy or overseas, information is available at:
from a compounding
> or < www.321website.com/members/home/data/goodshape/ >
< www.goodshape.net
stick with the patch as made by a qualified compounding
I personally will
some of you don't feel you can afford $250 a month and
pharmacist. I know
think it is neat to "do-it-yourself". I guess that is
others just
Personally I would never feel really comfortable that I
everyone's choice.
benefit as I could from the medication without the aid
was getting as much
could trust. I do not mind paying a professional with a
of a pharmacist I
and experience than I have for his/her expertise.
lot more knowledge
decide to use Procarin you will receive a videotape with
If you do
shows you how to use it. Note Mrs. Dulack's legs as
the medication which
patches. She looks as if she has not been on our type of
she applies the
looks like she gets nowhere near enough of the essential
diet. Her skin
that our primary way to beat MS is to keep ourselves as
oils. I still think
with the Lo-fat diet, supplements, exercise and stress
healthy as possible
patch looks to me like a nice addition to our anti MS
control. The Procarin
Bilberry for burning feet, L-Threonine for spasticity
arsenal. Just like
enzymes to make sure we utilize the nutrients in
and Ultra Zyme digestive
I doubt that any of it will be as effective as it can be
our diet. But,
without the Lo-fat diet and lifestyle changes.
look at my results. And Barbara's! We have both been
Just
totally with the diet for years. I got results in 2
religious in sticking
Barbara in three days. Others report it takes weeks or
days and 5 days.
can detect any changes. I think the difference is that
months before they
vibrantly healthy it will embrace the help it gets from
if your body is
that my 33 continuous years of MS diet and supplements
Procarin. I'm sure
me to survive up until the stress got me. The last 10
is what allowed
program, my disease has progressed much slower than any
years, still on the
other MS'er that I am aware of.
means try Procarin. But don't look upon it as the one
So, by all
to all your problems. If you do you may very well be
and total answer
Surviving MS is not a one shot deal of miracle drugs. It
disappointed.
requires a full commitment to a healthy way of life.
you might remember the little booklet I wrote called New
Some of
for those who have Multiple Sclerosis. The last few
Hope, Real Help
that book are still available to your local health food
hundred copies of
It is in the Nutri-Books Corp. catalog coded in
store from my distributor.
No more copies will be printed. So if you want a copy
the catalog as K476.
ask your health food store to order it for you.
that some of you who dropped out of our MS newsletter
I would hope
by sending in your SASE's again. But whether you do or
group will return
your own sake, dig out that old copy of Dr. Swank's The
not, please for
Diet Book, and start cooking the Lo saturated fat way
Multiple Sclerosis
again. Your body will thank you.
people pooh-pooh good eating habits and think that taking
Many
regular exercise is some kind of fad to be laughed at
vitamins and getting
But, who are our heroes? Who do our children and grand
and avoided.
Not the fat slob stuffing his face in the grandstand at
children idolize?
finely honed athletes, obviously in good physical shape,
the game, but the
out there on the field playing the game.
I think that almost everyone would like to be able to

Many of us even could compete if we had the moxie
compete in the Olympics.
to dedicate ourselves to it. But the Olympic games are
and self discipline
We need to fight MS. That's a lot harder and more
just that, games!
training for any kind of games. It takes unbelievable
serious than
self discipline to win this fight. If we lose a game, so
dedication and
and train harder and try again next time. But if we lose
what. We go back
simply by not trying hard enough we lose our quality of
the fight against MS
life.
many of you will try Procarin. But even more than that I
I hope
will re-dedicate yourselves the modified Lo-fat diet, the
hope all of you
and set up a regular routine of exercise and stress
supplement program
control.

Telephone (727)
John Pageler
546-0994 Thursday and Friday
6200 102nd Terrace North
8 p.m. - 11 p.m. EST
Pinellas Park, Florida 33782 E Mail <
infoonms@tampabay.rr.com

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